Batten Disease is a fatal illness that occurs mostly in children. This disease is hereditary, and as of now, there is no cure. Chris Brogan is a friend to a family who lost their son to Batten Disease. Now, the family is trying to cope with the loss of their son by raising awareness so that more research will be done to find a cure. No child or family should have to go through an illness this serious.
A few symptoms that Brogan listed were personality changes, poor vision, slow learning and clumsiness in children ages 4-10. I did some further research and found that girls are more likely to inherit Batten Disease than boys, according to the article, “A clinical rating scale for Batten disease.” A child a week is diagnosed with Batten Disease, according to “Batten Disease Support and Research International Awareness Days.”
This disease has to be difficult for families to go through. We need to help find a cure. If you want more information, you can visit Chris Brogan’s blog or search for it on Twitter. Brogan and the family are trying to spread the word using social media in attempts to find a cure.